As hypopara is so rare, it can sometimes feel isolating and be difficult to find other people who understand what you are going through. Many people find being connected to a hypopara society helpful, as they can speak to other people with hypopara, and share their own stories of living with this disease. Most of these societies are national, and operate within specific countries; however, you can reach out to whichever society you feel is best for you.

Hypopara Europe Network                                                           

Nordic Hypopara Organisation
                                                         Nordic hypoPARA

Danish Hypopara Association                                                           
The Danish Association for Hypoparathyroidism

 Swedish Hypopara Association                                                         Svensk förening för Hypoparatyreoidism                                                   

InSeNSU (Germany)                                                                              

Netzwerk Hypopara Germany                                                              

Hypoparathyroidisme France                                                          
Hypoparathyroïsdisme France

Italian Association for Patients with Hypoparathyroidism (APPI)     


Hypoparathyroidism Australia