As hypopara is so rare, it can sometimes feel isolating and be difficult to find other people who understand what you are going through. Many people find being connected to a hypopara society helpful, as they can speak to other people with hypopara, and share their own stories of living with this disease. Most of these societies are national, and operate within specific countries; however, you can reach out to whichever society you feel is best for you.

Hypopara Europe Network

hypoPARA NORGE Nordic hypoPARA (Nordic Hypopara Patient Group)

Danish Hypopara Association The Danish Association for Hypoparathyroidism

Swedish Hypopara Association Svensk förening för Hypoparatyreoidism (Swedish Hypopara Patient Group)


Netzwerk Hypopara Germany

Hypoparathyroidisme France Hypoparathyroïsdisme France (France Hypopara Patient Group)

Italian Association for Patients with Hypoparathyroidism (APPI)

Hypoparathyroidism Australia