RESOURCES

Read

In-depth articles

Article discussing what hypocalcaemia and hypercalcaemia are, how they occur in people with hypopara and what the signs and symptoms could be. C-ANPROM/INT//5232 June 2019
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Read helpful tips for people living with hypopara and their families and caregivers, on how to talk to your doctor about your condition. C-ANPROM/INT//5779 June 2019
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Hypoparathyroidism can lead to a number of long-term complications and comorbities if managed inadequately. This article is focused on providing information on these long-term complications and the careful monitoring required. C-ANPROM/INT//5825 July 2019


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Hypoparathyroidism can be a chronic, life-long disease which requires on-going management. This article provides information on different management options, as well as advice on management of hypoparathyroidism during childhood, before and after pregnancy and during menopause. C-ANPROM/INT//6484 July 2019


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Read

eBooks

Learn more from our eBooks – condensed digital books that provide an overview of hypopara. Read them and share them with someone you know to help educate others on this rare disease.

What is hypoparathyroidism?

C-ANPROM/INT//5231 May 2019

Living with hypoparathyroidism

C-ANPROM/INT//5456 August 2019

Living with hypoparathyroidism: the first worldwide survey of daily life for patients and carers

The immense impact on quality of life from hypoparathyroidsim goes beyond the physical symptoms. The infographic and video below, provide insights into living with this rare condition and explores the findings from the Burden of illness survey.

Burden of Illness survey

C-ANPROM/INT//8194 August 2020

Burden of Illness survey Video

C-ANPROM/INT/NAT/0027 December 2020

Listen

Listen

Listen to the new podcast series HypoparaExchange discussing physician and patient views and experiences of chronic hypoparathyroidism. Now available on https://soundcloud.com/hypoparaexchange

Watch

Learn more about hypopara through these short animations, and watch interviews from people living with hypopara, talking about their experiences with hypoapra.

Hypoparathyroidism explained

This short video describes the condition hypoparathyroidism, its symptoms and impact on the lives of those affected.

Fiona’s story

Watch Fiona’s testimony, sharing of how she developed hypopara after a thyroid removal surgery.

Natalie’s story

Watch Natalie’s story of how hypopara has impacted her life, and how she lives with this rare disease

Conor’s hypopara story

Video interview with Conor who is living with hypoparathyroidism (hypopara), explaining how he came to be diagnosed as a child, and what it is like living with this rare genetic disease.

Isabel’s hypopara story

Video interview with Isabel who is living with hypoparathyroidism (hypopara), telling how she came to be diagnosed and what it is like living with this rare disease.

Cristina’s hypopara story

Video interview with Cristina who is living with hypoparathyroidism (hypopara), telling how she came to be diagnosed and what it is like living with this rare disease.

Mari’s hypopara story

Video interview with Mari who is living with hypoparathyroidism (hypopara), telling how she came to be diagnosed and what it is like living with this rare disease.

The long-term impacts of hypopara

Understanding the long-term impacts of hypoparathyroidism (hypopara) on the kidneys

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